NO HAIR

ROUND 4

ACCESSED

ACCESSED

Alarm went off at 6am, Cyn woke me up in a panic at 8:47am to get some breakfast for Joe Joe and start packing up the gypsy caravan. I found that procrastinating admission for chemo round 4 makes it much more stressful. Coffee sucked, traffic sucked, no shower, barely got my teeth brushed. 

But, I've got the set up and breakdown of the Jaxie show down-pat. We ate, drove and were installed in less than 2 hours. You can imagine the looks we got at the hospital, we totally move! Logistics and efficiency keeps our minds off the fact that Jax is about to get accessed, and that means the next 30 days are going to totally suck. Our lives will do a 180 again. For now, the eerie quiet before chemo begins.

  

HERE I GO AGAIN

jaxon in the tub.jpg

Normal has not been around lately. I've really enjoyed my time with Cyn, Jax and Joe Thunder these past 12 days without any interruption from a nurse or Oncologist or med run. Getting a FaceTime call from Jax on my way to work, seeing the whole family as I come up the stairs when I come home at the end of the day, giving Jax a bath before bed, talking about Joe Thunder's trials at school over dinner, trying to hold on to normal.... We all know what's coming: ROUND 3.

   Cyn has been paralyzed by this and the weight of her two store locations. Anxiety builds as her return to living at the hospital approaches. She's a strong woman, and I worry because I can't remember a time when she's been without direction, unable to make any plans, just taking each day as it comes.

 

-Big Joe

IF I SPLIT, WHO'LL EAT THIS ICE CREAM??

Well! I tried to make a run for it but, I couldn't get my decoy here to play along.... So I got some ice cream instead! Thanks Cold Stone on Fowler, St. Joseph's Children's Hospital of Tampa and The Children's Dream Fund for the fun treats!!! 🍦🍦🍦‪#‎traxofjax‬ ‪#‎upsyndrome‬ ‪#‎t21‬ ‪#‎leukemialife‬