All checked in!!! A quick nap before starting our last chemo round!!! Day one of eight!!! 👊🏻👊🏻👊🏻
☀️☀️☀️ BABY SUNSHINE. WAITING TO BEGIN THE LAST ROUND OF CHEMO. ☀️☀️☀️
Tearin' up the sidewalks! Jax found the downhill speed today... worked this little slice of heaven out about 50 times. Ben da' Beagle was not amused.
Little bear is tuckered out!!! But wouldn't give up the glow stick!!! 🎃🎃
Parker and Jaxon play date!
Sometimes you need an alligator to sit in while you have a snack!!! ❤️👊🏻❤️👊🏻
Our world has been turned upside down; it seems like we're in the wash cycle. Hospital, home, chemo, recovery, round and round. It's been long enough to get used to it but, exhaustion is setting in. These are the situations that make one really assess what's important. We're going through another one of life's transitions. Currently in limbo waiting for the skin to shed and see what our new life brings.
We've been extremely fortunate with the outreach, prayers, donations and hugs. We can't say thank you enough to everyone that has asked and given to help us in these waters.
We would like to shine the light on a very special person though. She's a power to be reckoned with. A light that will never go out. A laugh that can be heard around the world! It's because of her that such an amazing community of artists has rallied to help guide us safely to shore; to recoup normal. Amy Jo your amazing! Amazing! Amazing!
We know and feel that because of you everyone involved with "Bump your tiny Fists" is honestly there to help. We can only hope to personally thank each and every one of the people that are there tonight and have listened to Jaxon's story. Jaxon is a star and this event is something for us all to take inspiration from.
Ready to get his port accessed! ❤️👊🏻❤️👊🏻
It's been a crazy couple a days; surprise discharge, returning to managing the stores, doctors appointments, stabilizing "home". Not sure where home is now?! Somewhere between work , school, and the hospital.
Jaxie's CBC (complete blood count) levels are on the upward swing to recovery for round 3. Breathe! Shake my head! And get ready for round 4. CHEMO SABE!!!
Well, it was short but sweet.. Jax got plenty of pool time in this past weekend. Re-admitting for recovery... Platelets are SUPER low at a 23, which means transfusions STAT.
Captain Fear from the Tampa Bay Buccaneers stopped by for fist bumps during the CureSearch for Children's Cancer walk on our hall today at St. Joseph's Children's Hospital of Tampa for all the kids and families that can't be at the walk in St. Petersburg tomorrow!!! Check out their Facebook page for more info on tomorrow's event or to donate!!! 👊🏻❤️👊🏻
Jaxon's been hanging tough since we've been on leave from St Joseph's Hospital. Teaching the folks in the kitchen at The Corner Store how to enjoy salami while whisking.
His immune system is still compromised, so anyone with a cold or sniffles is steering clear (hence the whisk). All in all, it's been a treat being out, aside from his parents' anxiety. Trying to curb the "helicopter parenting" is not easy.
Photo by DEEJ!