jaxon in the tub.jpg

Normal has not been around lately. I've really enjoyed my time with Cyn, Jax and Joe Thunder these past 12 days without any interruption from a nurse or Oncologist or med run. Getting a FaceTime call from Jax on my way to work, seeing the whole family as I come up the stairs when I come home at the end of the day, giving Jax a bath before bed, talking about Joe Thunder's trials at school over dinner, trying to hold on to normal.... We all know what's coming: ROUND 3.

   Cyn has been paralyzed by this and the weight of her two store locations. Anxiety builds as her return to living at the hospital approaches. She's a strong woman, and I worry because I can't remember a time when she's been without direction, unable to make any plans, just taking each day as it comes.


-Big Joe


Jaxon's been hanging tough since we've been on leave from St Joseph's Hospital.  Teaching the folks in the kitchen at The Corner Store how to enjoy salami while whisking.

His immune system is still compromised, so anyone with a cold or sniffles is steering clear (hence the whisk).  All in all, it's been a treat being out, aside from his parents' anxiety.  Trying to curb the "helicopter parenting" is not easy.

Photo by DEEJ!


So, Jaxon got discharged for 12 DAYS!  His rebound from the 2nd round of chemotherapy was super strong, so they gave us a break from the hospital.  SUPER AWESOME, right?  Well, the only catch is that our old loft is so moldy and old (not to mention the thousands of leaks that spring through when it rains), we're super stressed out about keeping him safe from infection while we're out. 

We got this rad HEPA filter, hoping it takes a lot of the airborne mold from the air, but Jaxie's already all snotty and congested since we've been home.  It's so nice to be out of the hospital, even when it's a surprise release, but we really have to move out of this loft ASAP, so we can be a little more relaxed when they give us a leave.

Our little champ is growing up so fast, he's talking up a storm, we got him special shoe inserts to help him walk (and he's cruising like a bruiser!), and he's mostly a happy camper.  It's just so crazy how quickly he's growing up, right before our eyes, IN THE HOSPITAL!!

Thank you all so much for keeping in touch with us.  We're gettin through this as best we can.  Trying to keep the stress to a minimum, although it's not that easy.